<?xml version="1.0" encoding="utf-8" standalone="yes"?><rss version="2.0" xmlns:atom="http://www.w3.org/2005/Atom"><channel><title>Recovery on A long dance with Rona</title><link>https://longcovid.blog/tags/recovery/</link><description>Recent content in Recovery on A long dance with Rona</description><generator>Hugo -- gohugo.io</generator><language>en-us</language><lastBuildDate>Tue, 09 Jun 2026 00:00:00 +0000</lastBuildDate><atom:link href="https://longcovid.blog/tags/recovery/index.xml" rel="self" type="application/rss+xml"/><item><title>Sleep slight improvement, difficult to manage, follow up with doctor</title><link>https://longcovid.blog/p/sleep-slight-improvement-difficult-to-manage-follow-up-with-doctor/</link><pubDate>Tue, 09 Jun 2026 00:00:00 +0000</pubDate><guid>https://longcovid.blog/p/sleep-slight-improvement-difficult-to-manage-follow-up-with-doctor/</guid><description>&lt;img src="https://longcovid.blog/p/sleep-slight-improvement-difficult-to-manage-follow-up-with-doctor/img/lake_superior_shore.webp" alt="Featured image of post Sleep slight improvement, difficult to manage, follow up with doctor" /&gt;&lt;h2 id="sleep-psychology-kicks-me-to-sleep-md"&gt;Sleep psychology kicks me to sleep MD
&lt;/h2&gt;&lt;p&gt;Over the past 19 months, I&amp;rsquo;ve been working periodically with a sleep psychologist. It&amp;rsquo;s worked great; in fact, I&amp;rsquo;ve mastered CBT-I. But, my subconscious brain does not want to sleep very long, and naps just haven&amp;rsquo;t happened for several months now.&lt;/p&gt;
&lt;p&gt;I have a sleep doctor appointment coming up, and I also track it with wearables. I pulled every night on my Oura ring and Garmin watch have recorded, and am sharing it here.&lt;/p&gt;
&lt;p&gt;The wearables don&amp;rsquo;t agree perfectly, and neither one is a sleep study. But two devices measuring the same nights, averaged together, paint a consistent picture — and it&amp;rsquo;s pretty awful.&lt;/p&gt;
&lt;h3 id="the-shape-of-a-bad-sleeper"&gt;The shape of a bad sleeper
&lt;/h3&gt;&lt;p&gt;&lt;img alt="Donald Duck lying wide awake in bed, exhausted and unable to sleep" class="gallery-image" data-flex-basis="320px" data-flex-grow="133" data-title-escaped="Me, most nights. over and over again" height="360" loading="lazy" sizes="(max-width: 767px) calc(100vw - 30px), (max-width: 1023px) 700px, (max-width: 1279px) 950px, 1232px" src="https://longcovid.blog/p/sleep-slight-improvement-difficult-to-manage-follow-up-with-doctor/img/dduck.gif" title="Me, most nights. over and over again" width="480"&gt;
&lt;/p&gt;
&lt;p&gt;Here are the last three months, by window:&lt;/p&gt;
&lt;table&gt;
 &lt;thead&gt;
 &lt;tr&gt;
 &lt;th&gt;Metric&lt;/th&gt;
 &lt;th style="text-align: center"&gt;Last 30&lt;/th&gt;
 &lt;th style="text-align: center"&gt;Last 60&lt;/th&gt;
 &lt;th style="text-align: center"&gt;Last 90&lt;/th&gt;
 &lt;/tr&gt;
 &lt;/thead&gt;
 &lt;tbody&gt;
 &lt;tr&gt;
 &lt;td&gt;Total sleep&lt;/td&gt;
 &lt;td style="text-align: center"&gt;5h 50m&lt;/td&gt;
 &lt;td style="text-align: center"&gt;5h 55m&lt;/td&gt;
 &lt;td style="text-align: center"&gt;6h 17m&lt;/td&gt;
 &lt;/tr&gt;
 &lt;tr&gt;
 &lt;td&gt;Efficiency&lt;/td&gt;
 &lt;td style="text-align: center"&gt;83%&lt;/td&gt;
 &lt;td style="text-align: center"&gt;83%&lt;/td&gt;
 &lt;td style="text-align: center"&gt;87%&lt;/td&gt;
 &lt;/tr&gt;
 &lt;tr&gt;
 &lt;td&gt;Time to fall asleep&lt;/td&gt;
 &lt;td style="text-align: center"&gt;13 min&lt;/td&gt;
 &lt;td style="text-align: center"&gt;16 min&lt;/td&gt;
 &lt;td style="text-align: center"&gt;16 min&lt;/td&gt;
 &lt;/tr&gt;
 &lt;tr&gt;
 &lt;td&gt;Deep&lt;/td&gt;
 &lt;td style="text-align: center"&gt;0h 59m&lt;/td&gt;
 &lt;td style="text-align: center"&gt;1h 10m&lt;/td&gt;
 &lt;td style="text-align: center"&gt;1h 25m&lt;/td&gt;
 &lt;/tr&gt;
 &lt;tr&gt;
 &lt;td&gt;REM&lt;/td&gt;
 &lt;td style="text-align: center"&gt;1h 03m&lt;/td&gt;
 &lt;td style="text-align: center"&gt;1h 02m&lt;/td&gt;
 &lt;td style="text-align: center"&gt;1h 10m&lt;/td&gt;
 &lt;/tr&gt;
 &lt;tr&gt;
 &lt;td&gt;Awake&lt;/td&gt;
 &lt;td style="text-align: center"&gt;1h 19m&lt;/td&gt;
 &lt;td style="text-align: center"&gt;1h 17m&lt;/td&gt;
 &lt;td style="text-align: center"&gt;0h 59m&lt;/td&gt;
 &lt;/tr&gt;
 &lt;tr&gt;
 &lt;td&gt;Overnight HR&lt;/td&gt;
 &lt;td style="text-align: center"&gt;51 bpm&lt;/td&gt;
 &lt;td style="text-align: center"&gt;49 bpm&lt;/td&gt;
 &lt;td style="text-align: center"&gt;49 bpm&lt;/td&gt;
 &lt;/tr&gt;
 &lt;tr&gt;
 &lt;td&gt;HRV&lt;/td&gt;
 &lt;td style="text-align: center"&gt;24 ms&lt;/td&gt;
 &lt;td style="text-align: center"&gt;26 ms&lt;/td&gt;
 &lt;td style="text-align: center"&gt;28 ms&lt;/td&gt;
 &lt;/tr&gt;
 &lt;tr&gt;
 &lt;td&gt;SpO₂&lt;/td&gt;
 &lt;td style="text-align: center"&gt;96.3%&lt;/td&gt;
 &lt;td style="text-align: center"&gt;96.4%&lt;/td&gt;
 &lt;td style="text-align: center"&gt;96.4%&lt;/td&gt;
 &lt;/tr&gt;
 &lt;/tbody&gt;
&lt;/table&gt;
&lt;p&gt;The recent trend is the wrong direction: the 30-night window is &lt;em&gt;worse&lt;/em&gt; than the 90-night one across almost every row. Less total sleep, lower efficiency, more time awake, less deep sleep, and an HRV sliding from the high 20s into the low 20s. Falling asleep isn&amp;rsquo;t my problem—13 minutes is fine. &lt;em&gt;Staying&lt;/em&gt; asleep is more than an hour awake most nights, after I&amp;rsquo;ve already drifted off.&lt;/p&gt;
&lt;p&gt;&lt;img alt="Total sleep per night over the last ~90 days, each night a faint dot with a bold 7-day rolling average hovering near six hours" class="gallery-image" data-flex-basis="428px" data-flex-grow="178" data-title-escaped="Total sleep per night — Oura + Garmin nightly mean, with a 7-day average." height="1120" loading="lazy" sizes="(max-width: 767px) calc(100vw - 30px), (max-width: 1023px) 700px, (max-width: 1279px) 950px, 1232px" src="https://longcovid.blog/p/sleep-slight-improvement-difficult-to-manage-follow-up-with-doctor/img/sleep_trend.webp" srcset="https://longcovid.blog/p/sleep-slight-improvement-difficult-to-manage-follow-up-with-doctor/img/sleep_trend_hu_74c5eae49e4be0ae.webp 800w, https://longcovid.blog/p/sleep-slight-improvement-difficult-to-manage-follow-up-with-doctor/img/sleep_trend_hu_b1dfadea26120176.webp 1600w, https://longcovid.blog/p/sleep-slight-improvement-difficult-to-manage-follow-up-with-doctor/img/sleep_trend.webp 2000w" title="Total sleep per night — Oura + Garmin nightly mean, with a 7-day average." width="2000"&gt;
&lt;/p&gt;
&lt;p&gt;Stack it up by stage and the deep-sleep erosion is the part that worries me. Deep sleep is where the body does its repair work, and mine has been thinning out month over month.&lt;/p&gt;
&lt;p&gt;&lt;img alt="Monthly sleep composition broken into deep, REM, core/light, and awake; deep sleep shrinks while awake time grows in recent months" class="gallery-image chart" data-flex-basis="428px" data-flex-grow="178" data-title-escaped="Sleep composition by month — Oura + Garmin nightly mean, hours per night." height="1120" loading="lazy" sizes="(max-width: 767px) calc(100vw - 30px), (max-width: 1023px) 700px, (max-width: 1279px) 950px, 1232px" src="https://longcovid.blog/p/sleep-slight-improvement-difficult-to-manage-follow-up-with-doctor/img/sleep_stages.webp" srcset="https://longcovid.blog/p/sleep-slight-improvement-difficult-to-manage-follow-up-with-doctor/img/sleep_stages_hu_f91362c9a1158f8.webp 800w, https://longcovid.blog/p/sleep-slight-improvement-difficult-to-manage-follow-up-with-doctor/img/sleep_stages_hu_4d96ef13233a5077.webp 1600w, https://longcovid.blog/p/sleep-slight-improvement-difficult-to-manage-follow-up-with-doctor/img/sleep_stages.webp 2000w" title="Sleep composition by month — Oura + Garmin nightly mean, hours per night." width="2000"&gt;
&lt;/p&gt;
&lt;h3 id="the-part-im-actually-bringing-to-the-doctor"&gt;The part I&amp;rsquo;m actually bringing to the doctor
&lt;/h3&gt;&lt;p&gt;The reason I wanted a sleep doctor in addition to the psychologist who was out of ideas—and not another app that tells me to avoid screens—is the breathing data. My overnight blood oxygen looks reassuring at a glance: it averages &lt;strong&gt;96.4%&lt;/strong&gt; and the nightly average never dips below 95%. No dramatic desaturations. So if this were straightforward obstructive apnea with oxygen crashing all night, it isn&amp;rsquo;t showing up that way.&lt;/p&gt;
&lt;p&gt;But Oura&amp;rsquo;s &lt;em&gt;breathing-disturbance index&lt;/em&gt; tells a noisier story. It averages a low &lt;strong&gt;4&lt;/strong&gt;, yet on &lt;strong&gt;12 of the last 62 nights it climbs to 8 or higher&lt;/strong&gt;, spiking as high as &lt;strong&gt;15&lt;/strong&gt;. Those disturbed nights don&amp;rsquo;t line up with low oxygen — they line up with the fragmented, low-deep-sleep nights above. That&amp;rsquo;s the question I&amp;rsquo;m handing the specialist: not &amp;ldquo;am I desaturating&amp;rdquo; (I don&amp;rsquo;t seem to be), but &amp;ldquo;why is my breathing this restless on a third of my nights, and is it what&amp;rsquo;s pulling me out of deep sleep?&amp;rdquo;&lt;/p&gt;
&lt;p&gt;&lt;img alt="Nightly overnight SpO₂ holding near 96% above a 95% guide line, with breathing-disturbance bars that stay low most nights but spike toward 15 on roughly a third of them" class="gallery-image" data-flex-basis="428px" data-flex-grow="178" data-title-escaped="Overnight SpO₂ (line, left) and Oura&amp;amp;rsquo;s breathing-disturbance index (bars, right), nightly. The index is relative, not a clinical AHI." height="1120" loading="lazy" sizes="(max-width: 767px) calc(100vw - 30px), (max-width: 1023px) 700px, (max-width: 1279px) 950px, 1232px" src="https://longcovid.blog/p/sleep-slight-improvement-difficult-to-manage-follow-up-with-doctor/img/sleep_breathing.webp" srcset="https://longcovid.blog/p/sleep-slight-improvement-difficult-to-manage-follow-up-with-doctor/img/sleep_breathing_hu_9f17d530b0b5c6d9.webp 800w, https://longcovid.blog/p/sleep-slight-improvement-difficult-to-manage-follow-up-with-doctor/img/sleep_breathing_hu_595b8ff61433ccbf.webp 1600w, https://longcovid.blog/p/sleep-slight-improvement-difficult-to-manage-follow-up-with-doctor/img/sleep_breathing.webp 2000w" title="Overnight SpO₂ (line, left) and Oura&amp;rsquo;s breathing-disturbance index (bars, right), nightly. The index is relative, not a clinical AHI." width="2000"&gt;
&lt;/p&gt;
&lt;p&gt;It&amp;rsquo;s worth naming what this &lt;em&gt;isn&amp;rsquo;t&lt;/em&gt;: a polysomnogram. A consumer Oura ring estimating respiration from the back of my finger is not an apnea diagnosis, and the breathing-disturbance index isn&amp;rsquo;t an AHI. But it&amp;rsquo;s 90 nights of my own bed instead of one wired night in a lab, and the pattern is consistent enough that I want a real test to confirm or rule it out.&lt;/p&gt;
&lt;h3 id="the-current-stack"&gt;The current stack
&lt;/h3&gt;&lt;p&gt;For completeness — and because every specialist asks — here&amp;rsquo;s what I&amp;rsquo;m taking at night right now:&lt;/p&gt;
&lt;table&gt;
 &lt;thead&gt;
 &lt;tr&gt;
 &lt;th&gt;Agent&lt;/th&gt;
 &lt;th&gt;Dose&lt;/th&gt;
 &lt;th&gt;Why&lt;/th&gt;
 &lt;/tr&gt;
 &lt;/thead&gt;
 &lt;tbody&gt;
 &lt;tr&gt;
 &lt;td&gt;Mirtazapine&lt;/td&gt;
 &lt;td&gt;15 mg&lt;/td&gt;
 &lt;td&gt;Sleep (and appetite)&lt;/td&gt;
 &lt;/tr&gt;
 &lt;tr&gt;
 &lt;td&gt;Night Rest + melatonin&lt;/td&gt;
 &lt;td&gt;2 tablets&lt;/td&gt;
 &lt;td&gt;5 mg melatonin, 300 mg Mg, 500 mg GABA&lt;/td&gt;
 &lt;/tr&gt;
 &lt;tr&gt;
 &lt;td&gt;L-Theanine&lt;/td&gt;
 &lt;td&gt;400 mg&lt;/td&gt;
 &lt;td&gt;Sleep, anxiety&lt;/td&gt;
 &lt;/tr&gt;
 &lt;tr&gt;
 &lt;td&gt;Glycine&lt;/td&gt;
 &lt;td&gt;3 g&lt;/td&gt;
 &lt;td&gt;Sleep&lt;/td&gt;
 &lt;/tr&gt;
 &lt;tr&gt;
 &lt;td&gt;Ashwagandha (root + KSM-66)&lt;/td&gt;
 &lt;td&gt;1 each&lt;/td&gt;
 &lt;td&gt;Sleep, anxiety, HRV&lt;/td&gt;
 &lt;/tr&gt;
 &lt;tr&gt;
 &lt;td&gt;Guanfacine ER&lt;/td&gt;
 &lt;td&gt;2 mg&lt;/td&gt;
 &lt;td&gt;Sleep, attention (paired with NAC, Yale LC study)&lt;/td&gt;
 &lt;/tr&gt;
 &lt;tr&gt;
 &lt;td&gt;Hydroxyzine&lt;/td&gt;
 &lt;td&gt;50 mg&lt;/td&gt;
 &lt;td&gt;Insomnia&lt;/td&gt;
 &lt;/tr&gt;
 &lt;tr&gt;
 &lt;td&gt;Charlotte&amp;rsquo;s Web Sleep CBD gummies&lt;/td&gt;
 &lt;td&gt;1 gummy&lt;/td&gt;
 &lt;td&gt;CBD + CBN + melatonin&lt;/td&gt;
 &lt;/tr&gt;
 &lt;/tbody&gt;
&lt;/table&gt;
&lt;p&gt;That is, frankly, a lot of scaffolding to hold up six hours of mediocre sleep. Part of what I want out of this appointment is permission to take some of it &lt;em&gt;away&lt;/em&gt; — to find out which of these is doing real work and which I&amp;rsquo;m taking out of nineteen months of desperation.&lt;/p&gt;
&lt;h3 id="what-im-hoping-for"&gt;What I&amp;rsquo;m hoping for
&lt;/h3&gt;&lt;p&gt;Yet another sleep study, probably. An answer to the breathing question, ideally. And—selfishly—a doctor who looks at the same charts I&amp;rsquo;m looking at and says &lt;em&gt;yes, that&amp;rsquo;s abnormal, here&amp;rsquo;s the next test&lt;/em&gt;, instead of &lt;em&gt;your numbers look fine.&lt;/em&gt; I&amp;rsquo;ve heard &amp;ldquo;fine&amp;rdquo; enough.&lt;/p&gt;
&lt;p&gt;&lt;em&gt;All figures here are nightly means of whichever of my Oura ring and Garmin watch recorded that night — consumer wearables, not clinical-grade instruments. Generated from my own health export; nothing here is medical advice.&lt;/em&gt;&lt;/p&gt;
&lt;h3 id="in-other-neurological-news"&gt;In other neurological news
&lt;/h3&gt;&lt;p&gt;More migraine medications to help with a problem I&amp;rsquo;m not that worried about (I already take Emgality, and it helps minimize migraines). Also, taking medication for elevated labs that could (or probably not) be myasthenia gravis.&lt;/p&gt;</description></item></channel></rss>